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CAL RARE is dedicated to improving the lives of rare disease patients in California. We are a coalition of rare disease stakeholders with a goal to raise awareness among the general public and decision makers regarding rare diseases. We want to bring recognition to the issues rare disease patients face and work to ensure access to physicians, treatments, and social services.   

News

Friday, August 21, 2020 5:02 PM

Video: Virtual Rare Disease Caucus Hearing August 12, 2020


Tuesday, August 11, 2020 10:29 PM

Virtual Rare Disease Caucus Hearing

Virtual Rare Disease Caucus Hearing! 

Wednesday, August 12, 2020

11am-12pm

Agenda


Saturday, February 8, 2020 4:44 PM

Rare Disease Day Family Meetup

Flyer: CARare_RareDiseaseDay


Thursday, January 30, 2020 10:25 AM

What a Year! 2019 Year In Review

2019 Year In Review


Thursday, January 30, 2020 10:13 AM

Rare NBA Week!

TWO Rare Disease Awareness Nights in March! 

For Kings tickets, click here

For Warriors tickets...go to Cal Rare Contribute page, complete form adding "Warriors" in Membership field, add amount equivalent to the number of tickets you wish to purchase


California Action Link for Rare Diseases Inc. (CAL RARE), 1811 Santa Rita Road, Suite 224, Pleasanton, CA 94566

CAL RARE is a registered 501(c)(3) non-profit organization #81-5461840
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