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The Rare Disease California Caucus is the first project of CAL RARE and was launched in 2017 to promote awareness of rare disease issues. The bipartisan Caucus is led by Assemblymember and Health Committee Member Rob Bonta (D-Oakland) and Assemblymember and Health Committee Vice Chair Brian Maienschein (R-San Diego).

GOALS:

  • Bring public and legislative awareness
  • Ensure rare disease patients have a voice in shaping policy
  • Educate legislators and staff about rare disease policy issues
  • Opportunity for legislature to engage with rare disease community (patients, academia, hospitals, biopharmaceutical industry, government agencies)

LEGISLATIVE STAFF CONTACT:

Assemblymember Rob Bonta's Office: Alma Barreras, alma.barreras@asm.ca.gov, 916-319-2018

Assemblymember Brian Maienschein's office: Olga Shilo, olga.shilo@asm.ca.gov, 916-319-2077

MEMBERS:

Assemblymember Bonta (Co-Chair)
Assemblymember Maienschein (Co-Chair)
Assemblymember Choi
Assemblymember Arambula
Assemblymember Fong
Assemblymember Waldron
Assemblymember Salas
Assemblymember Gipson
Assemblymember Obernolte
Assemblymember Cunningham
Assemblymember Levine
Assemblymember Quirk
Assemblymember Cooper
Assemblymember Chiu
Assemblymember Gloria
Assemblymember O’Donnell
Assemblymember Baker
Assemblymember Burke
Assemblymember Mathis
Assemblymember Gallagher
Assemblymember Irwin
Assemblymember Patterson
Senator Wiener
Senator Skinner
Senator Nielsen
Senator Dr. Pan
Senator
 Glazer
Senator Allen


California Action Link for Rare Diseases Inc. (CAL RARE), 1811 Santa Rita Road, Suite 224, Pleasanton, CA 94566

CAL RARE is a registered 501(c)(3) non-profit organization #81-5461840
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