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The Rare Disease California Caucus is the first project of CAL RARE and was launched in 2017 to promote awareness of rare disease issues. The bipartisan Caucus is led by Assemblymember Rob Bonta (D-Oakland), Assemblymember Brian Maienschein (D-San Diego), and Assemblymember Marie Waldron (R-Escondido).

GOALS:

  • Bring public and legislative awareness
  • Ensure rare disease patients have a voice in shaping policy
  • Educate legislators and staff about rare disease policy issues
  • Opportunity for legislature to engage with rare disease community (patients, academia, hospitals, biopharmaceutical industry, government agencies)

LEGISLATIVE STAFF CONTACT:

Assemblymember Rob Bonta's office: Uriel Saldivar, uriel.saldivar@asm.ca.gov, 916-319-2018

Assemblymember Brian Maienschein's office: Michael Chen, michael.chen@asm.ca.gov, 916-319-2077

Assemblymember Marie Waldron's office: Joseph Shinstock, joseph.shinstock@asm.ca.gov, 916-319-2075

MEMBERS:

Assemblymember Rob Bonta (Co-Chair, D-18)

Assemblymember Brian Maienschein (Co-Chair, D-77)

Assemblymember Marie Waldron (Co-Chair, R-75)

Assemblymember Joaquin Arambula (D-31)

Assemblymember Rebecca Bauer-Kahan (D-16)

Assemblymember Autumn Burke (D-62)

Assemblymember David Chiu (D-17)

Assemblymember Steven Choi (R-68)

Assemblymember Jim Cooper (D-9)

Assemblymember Jordan Cunningham (R-35)

Assemblymember Vince Fong (R-34)

Assemblymember Jesse Gabriel (D-45)

Assemblymember James Gallagher (R-3)

Assemblymember Mike Gipson (D-64)

Assemblymember Todd Gloria (D-78)

Assemblymember Jacqui Irwin (D-44)

Assemblymember Marc Levine (D-10)

Assemblymember Devon Mathis (R-26)

Assemblymember Jay Obernolte (R-33)

Assemblymember Patrick O’Donnell (D-70)

Assemblymember Jim Patterson (R-23)

Assemblymember Bill Quirk (D-20)

Assemblymember Rudy Salas (D-32)

Assemblymember Buffy Wicks (D-15)

Senator Ben Allen (D-26)

Senator Brian Dahle (R-1)

Senator Steven Glazer (D-7)

Senator Jim Nielsen (R-4)

Senator Richard Pan (D-6)

Senator Nancy Skinner (D-9)

Senator Scott Wiener (D-11)

 


California Action Link for Rare Diseases Inc. (CAL RARE), 1811 Santa Rita Road, Suite 224, Pleasanton, CA 94566

CAL RARE is a registered 501(c)(3) non-profit organization #81-5461840
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